If you are a person with multiple sclerosis and have not heard of NARCOMS then you might be missing out on a few things.
The NARCOMS project was started in 1993 by the Consortium of Multiple Sclerosis Centers. The project is led by Dr. Tim Vollmer, an international leader in multiple sclerosis care, immunology, and MS research. The project is based at Rocky Mountain MS Center in Englewood, Colorado.
NARCOMS has developed an MS Patient Registry that is the largest of its kind in the world. The primary purpose of the NARCOMS project is to facilitate multi-center research in the broad field of Multiple Sclerosis. Collaboration between centers of excellence in Multiple Sclerosis is essential for rapid progress in the development of better treatments for MS and for greater understanding of the disease.
The purpose of the NARCOMS Multiple Sclerosis (MS) Registry is to accelerate the process of informing patients of research projects for which they are eligible. This information may expedite the development of more effective treatments.
As of December 2008, the number of Registry enrollments has reached 34,000 and new participants are joining everyday. Convenient online enrollment for anybody diagnosed with MS is available at:
https://narcoms.emergemd.com/Login.aspx?ReturnUrl=%2fDefault.aspx&cookie_test=true
Individuals with Multiple Sclerosis who enroll in the NARCOMS Registry receive the printed version of the Multiple Sclerosis Quarterly Report (MSQR) four times a year. This journal is free of charge and includes original review articles, NARCOMS news, breaking news, as well as listings of clinical trials in progress and open for enrollment.
